|
|
| Useful
Information |
| What is CLL?
Chronic lymphocytic leukaemia (also
called CLL) is a blood and bone marrow disease that
often gets worse slowly. CLL is the second most common
type of leukemia in adults. It often occurs during or
after middle age; it occurs rarely in children.
For further information visit the
National Cancer Institute website |
|
|
What is the list?
It is non-moderated
discussion list for patients, family, friends,
researchers, and physicians, to discuss clinical and
non-clinical issues and advances pertaining to Chronic
Lymphocytic Leukemia. It includes patient experiences,
psychosocial issues, new research, clinical trials, and
discussions of current treatment practices and
alternatives. The principal focus is expected to be
information and reassurance for patients and carers.
This list is entirely free, and is run completely by
volunteers. |
|
| What is ACOR?
The CLL list is part of a group of cancer lists
in an organization called ACOR (Association of Cancer Online
Resources). ACOR
offers access to
mailing lists that provide
support, information, and community to everyone affected by
cancer and related disorders. For
more information go to its
homepage |
|
|
Who are List Managers?
The
list managers are members of the list who have volunteered
to help run the list. They have two jobs. The first is to help
members struggling to use the list, for which purpose they have
access to special facilities. The second job is to maintain the
list rules as defined in the list etiquette
Do contact the list managers
using their special address
cll-request@listserv.acor.org at any
time if you are having problems with using the list or have
concerns over its content. |
|
| Professors' Posts
There is a volunteer member of the list, Professor Susan Leclair. Professor Terry Hamblin
was member before he retired from practice. Susan Leclair is the Chancellor Professor of Medical
Laboratory Science, Department of Medical Laboratory Science, University of
Massachusetts Dartmouth. Terry Hamblin is the Professor of Immunohaematology at
the University of Southampton, UK and a distinguished CLL specialist. A
selection of their posts to the list,
"Professors' Posts" , sorted by topic may well contain the answer to your query; it will
certainly give you an insight into CLL. |
|
|
The CLL Patient Database is a major project collecting information
on CLL patients to assist medical research. You are encouraged to join. |
|
| ACOR is a charity the depends upon donations.
How to help ACOR |
|
| If you have any comment or suggestions about
these pages please write to
p.maguire@ntlworld.com |
|
DISCLAIMERS
Information posted to this mailing list is
for educational purposes only and is not intended to replace or give any
medical advice or treatments. Any information pertaining to your health
should be reviewed with your personal healthcare professional.
No liability, explicit or implied, shall be
extended to the owners, maintainers, or sub-contractors of this listserv
location for messages posted to the list. The owners make no assurances
of the accuracy and/or the relevancy of the information posted to this
list or to information referred to by messages to this list.
You may not post any copyrighted material on
the list without written permission. However, you may quote messages
posted to this list when you are replying to the list, as long as you
indicate from whom the quote came. For any other use of messages you see
on this list, you must contact the originator of the message for
permission. |
|
| page last updated
12 April 2008 |
| |
|
|
