CLL Help Pages

chronic lymphocytic leukaemia, one of the most common forms of blood cancer


These pages are associated with the ACOR CLL list. The ACOR CLL list is an internet discussion group for people with, or interested in, Chronic Lymphocytic Leukaemia.  But the pages do contain useful information for anyone interested in CLL. The list was founded by Barbara Lackritz, GrannyBarb.


Useful List links
CLL FAQ, glossary, acronyms
Professors' Posts
GrannyBarb, Barbara Lackritz
Barb's leukaemia links
List of CLL Doctors
US Health Insurance
List photo gallery
 
Key Links
Chaya Venkat's CLL Topics

A rich website written by a layperson for other laypersons.

US CLL Consortium
CLL Global Research F'dation
Healthtalk International

A source of webcasts and talks

Pubmed

Abstracts of all published medical papers with a good search facility

Scott's Research List
American Soc of Haematology
British Soc. of Haematology
UK CLL Support Association
UK CLL treatment guidelines
US National Cancer Institute
CLL Perspectives
UK Leukaemia Research Fund
 
Other Useful Links
Alternative Therapies list
Barb's Leukaemia Book
Dana-Farber Cancer Institute
MD Anderson
Mayo Clinic
Information on Drugs
Electronic medicine
Neutropenic Diet
Quackwatch
Median isn't the message

The piece you must read before looking at medical statistics. The author is the late Stephen Jay Gould, the eminent evolutionary biologist.

The Royal Marsden
VH mutational status
Oncology Channel
Memorial Page
CLL Forum
Wikipedia
CURE
Tom McCune's Homepage
CLL Canada
Useful Information
What is CLL?

Chronic lymphocytic leukaemia (also called CLL) is a blood and bone marrow disease that often gets worse slowly. CLL is the second most common type of leukemia in adults. It often occurs during or after middle age; it occurs rarely in children.

For further information visit the National Cancer Institute website


What is the list?

It is non-moderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and non-clinical issues and advances pertaining to Chronic Lymphocytic Leukemia. It includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices and alternatives. The principal focus is expected to be information and reassurance for patients and carers. This list is entirely free, and is run completely by volunteers.


What is ACOR?

The CLL list is part of a group of cancer lists in an organization called ACOR (Association of Cancer Online Resources).  ACOR offers access to mailing lists that provide support, information, and community to everyone affected by cancer and related disorders. For more information go to its homepage


Who are List Managers?

The list managers are members of the list who have volunteered to help run the list. They have two jobs. The first is to help members struggling to use the list, for which purpose they have access to special facilities. The second job is to maintain the list rules as defined in the list etiquette

Do contact the list managers using their special address cll-request@listserv.acor.org at any time if you are having problems with using the list or have concerns over its content.


Professors' Posts

There is a volunteer member of the list, Professor Susan Leclair. Professor Terry Hamblin was member before he retired from practice. Susan Leclair is the Chancellor Professor of Medical Laboratory Science, Department of Medical Laboratory Science, University of Massachusetts Dartmouth. Terry Hamblin is the Professor of Immunohaematology at the University of Southampton, UK and a distinguished CLL specialist. A selection of their posts to the list, "Professors' Posts"  , sorted by topic may well contain the answer to your query; it will certainly give you an insight into CLL.


The CLL Patient Database is a major project collecting information on CLL patients to assist medical research. You are encouraged to join.

ACOR is a charity the depends upon donations. How to help ACOR

If you have any comment or suggestions about these pages please write to p.maguire@ntlworld.com

DISCLAIMERS

Information posted to this mailing list is for educational purposes only and is not intended to replace or give any medical advice or treatments. Any information pertaining to your health should be reviewed with your personal healthcare professional.

No liability, explicit or implied, shall be extended to the owners, maintainers, or sub-contractors of this listserv location for messages posted to the list. The owners make no assurances of the accuracy and/or the relevancy of the information posted to this list or to information referred to by messages to this list.

You may not post any copyrighted material on the list without written permission. However, you may quote messages posted to this list when you are replying to the list, as long as you indicate from whom the quote came. For any other use of messages you see on this list, you must contact the originator of the message for permission.


page last updated 12 April 2008
 
What's New

CLL Perspectives

Help with the list
Contacting the list managers
How to join the list
Password Problems
How to use the list
List Rules and Etiquette
Accessing the list archives
Changing your list account
 
New to CLL
Advice for new patients
Patient's introduction to CLL
US Leuk & Lymph Soc.
UK Leukaemia Research Fund
CancerBacup
 
Members' Blogs
David Arenson
Steve Madden
Terry Hamblin
John Wagner
Margaret Klubben