What are some of the leukemia-related organizations?

Chronic Lymphocytic Leukemia Foundation

The Foundation has as its main objective to fund research directed to finding a cure for Chronic Lymphocytic Leukemia (CLL). To this objective the Foundation seeks donations from individuals and organizations, disseminates information to increase public awareness of this illness and influence government policy towards a higher level of funding for research.

Address:1415 Louisiana, Suite 3625
Houston, Texas 77002
Telephone:(713) 752-2350
Fax:(713) 752-2359
Internet:www.cllfoundation.org

Leukaemia Research Fund (LRF)

The Leukaemia Research Fund (LRF) is the only national UK charity devoted exclusively to improving treatments, finding cures, and investigating the causes and prevention of cancers of the blood and related conditions, in children and adults. The LRF brings together under one banner scientists and doctors at leading hospitals, medical schools and universities across the UK to work towards its goal. LRF researchers are among world leaders in their fields.

More than 200 highly tuned research teams carry out the LRF's research. This includes 30 Specialist Programmes to develop key areas of research such as bone marrow transplantation and treating children with leukaemia.

A registered charity, the LRF relies on the dedicated support of more than 200 voluntary fundraising Branches and thousands of other people from all walks of life who contribute their time and money to make its work possible.

Address:43 Great Ormond Street
London, WC1N 3JJ
Telephone:020 7405 0101
Fax:020 7405 3139
Internet:www.lrf.org.uk

Leukemia & Lymphoma Society, Inc.

The Leukemia & Lymphoma Society's mission is to cure leukemia, lymphoma, Hodgkin's disease, and multiple myeloma, and to improve the quality of life of patients and their families. The Society has dedicated itself to being one of the top rated voluntary health agencies in terms of dollars that directly fund this mission. Close to 80 percent of expenditures are directed to research, patient services, advocacy, education, and community services.

Address:Leukemia & Lymphoma Society, Inc.
1311 Mamaroneck Avenue
White Plains, NY 10605
Telephone:(914) 949-5213
Fax:(914) 949-6691
Internet:www.leukemia.org

Leukemia Research Fund of Canada

The Leukemia Research Fund of Canada is a volunteer driven organization whose mission is to eliminate leukemia and related blood diseases by funding vital Canadian research and promoting public understanding of the disease until the permanent cure is found.

Address:1110 Finch Avenue West Suite 220
Toronto, Ontario M3J 2T2
Telephone:1-800-268-2144
Fax:(416) 661-7799
Internet:www.leukemia.ca

Patient Databases, Inc.

PDI has been established to acquire data about symptoms, treatments, and medical tests relevant to blood diseases. The initial focus is on Chronic Lymphocytic Leukemia (CLL). PDI encourages all CLL patients to enter their medical and personal information so that data analysis can be performed on large numbers of patients, leading to potential discoveries about the relationships between age at diagnosis, gender, geographic location, time between treatments, rapidity of blood changes, the effectiveness of various treatments, and other factors. Much of the information collected will be based on the advice of medical and research specialists at the National Cancer Institute of the National Institutes of Health as well as international centers concerned with CLL. Results of analyses of the data will be made available to the medical community, public policy makers, patients and their families, and to the general public. PDI will also track additional data useful in diagnosis and the development of prognostic indicators for CLL. The potential usefulness of these approaches to other blood diseases and other chronic illnesses will also be explored in consultation with the scientific and medical community, advocacy groups, and others.

The Board of Directors of PDI is comprised of patients and others who have an interest in finding a cure for chronic lymphocytic leukemia and other blood diseases, medical researchers and practitioners, public health specialists, information technology experts, and those concerned with increasing our knowledge of chronic lymphocytic leukemia and other blood diseases.

Address:2005 37th Street NW
Washington, DC 20007
Telephone:(202) 337-2376
Fax:(202) 342-6434
Internet:www.patientdatabases.org

The CLL Research Consortium

The CLL Research Consortium is a multi-institution research program sponsored by the National Cancer Institute to study chronic lymphocytic leukemia (CLL) in an entirely new way. The CLL Research Consortium has its national coordinating office at the University of California, San Diego, School of Medicine.

The consortium is unique in that it brings together the nation's top scientists from different disciplines - genetics, cell biology, biochemistry, immunology and pharmacology - to conduct an integrated program of basic and clinical research focused on a single disease. CLL is the most common adult leukemia, and is currently incurable.

The member institutions are:

The Burnham Institute Ohio State University Cancer Center
La Jolla, CA Columbus, Ohio
 
Dana Farber Cancer Institute Thomas Jefferson University
Harvard Medical School Kimmel Cancer Institute
Boston, MA Philadelphia, PA
 
Johns Hopkins University University of California, San Diego (UCSD)
Oncology Center UCSD Cancer Center
Baltimore, MD La Jolla, CA
 
Long Island Jewish Medical CenterWalter Reed Army Medical Center
Division of Hematology/Oncology Hematology/Oncology Service
New Hyde Park, NY Washington, D.C.
 
M.D. Anderson Cancer Center
Houston, TX

Internet: cll.ucsd.edu/index.htm