How may I be in touch with other CLL patients?

For those who have access to the Internet, the CLL List is an on-line community of CLL patients, family and friends of patients, healthcare professionals, and others. Barbara Lackritz, a.k.a. GrannyBarb, founded the CLL List September 11, 1996, and as of April 2003 it has grown to over 2106 subscribers in 33 countries. The List is a member of ACOR.Org, the Association of Cancer Online Resources, Inc., a 501©(3) non-profit corporation registered in New York State, and it is hosted on their Internet site at http://listserv.acor.org.

Subscribers are able to post messages to the List on a variety of topics including, questions and answers about symptoms, treatment information, complications, medical resources, hopes and fears, and general support. These postings are collected and mailed daily in digest form (single message) to all subscribers using robot software created by L-Soft International, Inc. The List is not moderated, so postings go directly to the List and are not screened by the List owners. People who prefer to receive individual posts may reset their subscriptions for that option. New members to the CLL family will experience a warm welcome and a strong sense of community and support on the CLL List.

The List has made a huge contribution toward exchanging and expanding knowledge about CLL. The archives are available to all List members. Come and join us on the CLL List. To subscribe, send an e-mail message to: listserv@listserv.acor.org. In the message of the e-mail, write: "Subscribe CLL" followed by your first and last names. Do not include any other information, or write anything in the subject line of the e-mail. If you use AOL, simply use a dash or a period in the subject line. On the web, visit http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?SUBED1=cll&A=1

Maggie Rice and Barbara Lackritz founded a Canadian CLL List (CLL-CN) November 2, 1999. The Canadian CLL List contains additional focus on issues facing Canadian CLL patients. Instructions for subscribing to the Canadian CLL List are almost the same as those for subscribing to the CLL List. The only change is in the message portion of the subscription e-mail where you must type, "Subscribe CLL-CN" followed by your first and last names. The Canadian CLL List has grown to 141 subscribers as of April 2003.

For information on local support groups, patients are encouraged to consult their hematologists or local chapters of the Cancer Society.